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NATIONAL RENAL REGISTRY ESTABLISHED WITH NHF FUNDING – Web-Based Registry To Support Improved Management Of Renal Disease

NATIONAL RENAL REGISTRY ESTABLISHED WITH NHF FUNDING – Web-Based Registry To Support Improved Management Of Renal Disease

The Caribbean Institute of Nephrology at the University of the West Indies (UWI), has facilitated the establishment of the National Renal Registry of Jamaica, with a J$7.5 million grant from the National Health Fund.

A renal registry gathers data on patients with kidney disease and provides information on their demographics, causes, incidence, prevalence of various stages of the disease, distribution of the disease, the effectiveness of various interventions and other factors relating to renal failure.

The kidneys function to remove impurities from the blood and kidney disease is generally diagnosed based on the filtration capacity of the kidneys to remove these impurities and also on components in the urine. High blood pressure and diabetes are the two leading causes of kidney or renal failure.

The Ministry of Health estimates that there are 1,170 persons who require dialysis treatment annually and there are several hundred persons diagnosed with chronic renal failure each year.

According to Professor Everard Barton, Chief of Nephrology at UHWI & Chairman of Caribbean Institute of Nephrology, “The National Renal Registry will greatly contribute to understanding of the causes of kidney disease. It will also enable policy makers and healthcare planners to develop more effective interventions for the prevention and treatment of kidney disease in Jamaica and make the best possible use of the limited resources available.”

The National Renal Registry was designed and developed by the Caribbean Institute of Nephrology and E-Health Portfolio Inc., a Public Health Intelligence Corporation in the United States. Professor Barton noted that previous to this project, the Institute developed a rudimentary registry by manually inputting information on data sheets then transferring these to a computer. “This was a very time consuming effort which was years behind. Moreover it took several hours to mine information needed for research purposes. The current Renal Registry is web-based and allows for real time entry of data and easy manipulation for research purposes.”

Training to use the web-based renal registry has been done at Cornwall, Mandeville and St. Ann’s Bay Regional Hospitals, Kingston Public Hospital and the University Hospital of the West Indies. Selected staff at these facilities have been trained to enter data into the registry. Staff at local private dialysis units and private hospitals will be trained and given access to the registry by year-end so that data can be captured from these facilities.

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